I'm 79. As a child in the 1950s, I was subject to meltdowns, explosions of temper, impusliveness, hyperactivity (even in sleep!), and more, and for that I was criticized and put down. There was no such thing as ADHD in the 1950s, at least, nobody knew or suspected there was. Children were expected to conform to societal (neurotypical) norms. Fast forward to 2010, and my grandson, 6 years old at the time, was diagnosed with severe ADHD and placed on medication and counseling. Thank goodness he didn't have to go through what I went through -- being labeled a "bad kid," having difficulties at home, in school, with friends. Preoccupations kept me from realizing at the time, but in 2024, when my grandson was 19, I began to understand that his behavior when he was a child mirrored my own when I was a child. That led me to explore ADHD, and the more I read about it, the more I began to suspect that I did have ADHD, because my life began to make sense! I found ADDA+ and ADDitude Magazine, and read more about ADHD. This year (2026), I decided to get a diagnosis so I could begin treatment. I had read that it was difficult for older adults, especially women and minorities, to get a proper diagnosis, and I found out first hand just what was involved in that. The neuropsychologist who diagnosed -- that is to say, MISdiagnosed -- me in March of this year (2026) was way off the mark. Just for a few examples of her incompetence, she used DSM-IV and ICD-10, both of which are outdated, for her diagnostic criteria. Both are inadequate, according to many expert ADHD researchers, for diagnosing adult ADHD. She said I didn't have ADHD, but was just reacting badly to many stresses from the past several years. So why had I struggled for more than 70 years with emotional dysregulation, impulsivity, disorganization, failure to complete projects, and more? Her interview with me was only 45 minutes, woefully inadequate, according to other practitioners (including a colleague of my older daughter's at work) to gather sufficient data for a proper diagnosis. This practitioner did not ask to see my husband, my daughters (both middle-aged), or my friends to inquire of them for their perspective on my behavior. She missed more points of requirement for a proper ADHD diagnosis. She said I had an anxiety disorder, which I don't have, according to the DSM-5 definition and criteria. I told her I was going to seek a second opinion. For that, I engaged as a consultant one of the most-recognized experts in ADHD. He interviewed me for over 2 hours, listened to me (way more than that other practitioner did), used the latest criteria (DSM-5 and ICD-11) and his own extensive research for diagnosis. He diagnosed me with ADHD, combined type, severe, highly compensated. I'm having to jump through more hoops to get started on medication, just because too many practitioners have not been trained/educated about ADHD in their schooling. What does living with undiagnosed ADHD feel like? It feels like Hell, that's what.
A sad woman has undiagnosed ADHD.
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Can ADHD Show Up Later In Life?
There's been much debate as to whether adult-onset attention deficit disorder is real. What is real, however, is that ADHD — particularly in women — is frequently overlooked, sometimes for decades at a time. The most noticeable symptoms, like hyperactivity, manifest differently in boys and are too often disregarded as "ditzy" behavior in girls. Plus, the inattentive symptoms more commonly seen in girls are regularly mistaken for something else.
Living with an unrecognized condition can lead to years of low self-esteem and shame until a diagnosis shines a light on why everything has been so hard for so long. ADDitude readers and experts share what it felt like living with undiagnosed ADHD. Can you relate?
A woman with ADHD sleeps on a sofa with a book over her face.
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1. Running on Empty
"All my life, I had struggled with a vague sense that something was different about me. I felt inferior, inadequate, undisciplined, and hopelessly disorganized — all feelings that have been, at one time or another, reinforced by others in my life... I had gotten used to feeling tired before I even got out of bed, of dreading the new day and its various obligations. I was exhausted, struggling at work and at home with my kids. It took every ounce of physical, mental, emotional, and spiritual strength to live my life — until I finally met someone who listened to my story and gave me a chance to do something about it." — Donna Surgenor Reames
A woman with ADHD in an astronaut suit, covering her face. The condition can make you feel like you’re from Mars.
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2. Like You Belong on Mars
"You feel 'different.' You are told you're lazy, not trying hard enough, a space cadet, and that you aren't living up to your potential. You'd lose your head if it wasn't attached. For 30 years. Good times." – Sarah C.
A man with ADHD watches his colleagues gossiping about him.
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3. Everyone is Laughing Behind Your Back
"Living with undiagnosed ADHD trained me to feel inept. In grown-up situations, I never expected to be taken seriously. I was always afraid that everyone was sniggering at me behind my back. The fear was all in my head." – Zoë Kessler
A woman with ADHD reads a book, oblivious to any other obligations.
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4. Like You're Wearing Blinders
"Some people with undiagnosed ADHD think they are living a normal life. Then you find out there is nothing normal about reading 350 romance novels in three years while your finances, house, and life fall down around you." – An ADDitude blogger
An illustration of a person with ADHD climbing towards success after being diagnosed.
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5. Always Stumbling
"I was one of those people with ADHD who fall through the cracks. I didn't have trouble in school, and the problems that showed up later in life weren't obvious to others. I never felt lazy or stupid. I always knew I was talented, but I would stumble over all sorts of things. I couldn't seem to get stuff done. I felt thwarted. Being diagnosed with ADHD changed my life. I call the diagnosis my 'Rosetta Stone,' because behavior that I had never been able to understand suddenly made sense." – Sally Harris
A little girl with ADHD sits in the grass looking sad.
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6. Quieter than the Rest
"I grew up in a large Cuban extended family. Like most kids with inattentive ADHD, I was not a happy-go-lucky, gregarious child. I was introverted, anxious, finicky, uncoordinated, and distracted, but the fact that I was quiet was a blessing in my home. I was often the only person in our crowded house who was not talking." – Tess Messer
A mother with ADHD feels overwhelmed by all of her responsibilities.
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7. Winging it All the Time
"At 35 years old, I worked it out myself. Motherhood was my undoing. I couldn't 'wing it' any longer. The official diagnosis was a massive relief. Finally I had an explanation! Meds have changed my life; now I can cope! Yes, my house may feel disorganized, but at least I can keep on top of all the basics and not feel completely overwhelmed ALL the time, just some of it." – Jodi H.
An illustration of a person with ADHD trying to put two puzzle pieces together the wrong way.
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8. Like a Puzzle That Doesn't Fit Together
"As early as grade school, I wrote an essay titled 'The Different Child.' I've spent my life wondering, Why aren't the pieces fitting together? I'm always getting lost in conversations. When something's important, like directions, or something that has to do with a sequence, I can't follow it. I can't hear the information and store it." – Debbie Young
A woman with ADHD is bored and looks at her phone.
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9. Always Bored
"I was hired, promoted, and then fired, or I quit out of frustration or boredom. I understand now that I am easily bored, and I stopped blaming everyone else for being boring. I learned to stay engaged in conversations by pretending it's a first date." – Eva Pettinato
A women with ADHD is ashamed and hides her face.
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10. Like You Want to Run and Hide
"My classes were so overwhelming, I remember staring at the classroom doorknob, wanting to run away. So I did. I just left school and walked home one day." – Joanne Griffin
A woman with ADHD is ashamed and puts a bag over her head.
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11. Ashamed
"Like most moms, I had always believed I should be able to manage the household, take care of the kids, keep food on hand, and so on. But I couldn't, and I felt ashamed." –Terry Matlen
A piggy bank that was broken by an impulsive spender with ADHD.
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12. Like a Fliberdegibbit
"I have never been able to save enough money. I would spend impulsively, and pay my bills whenever I could remember. I felt like I would never by able to have a decent credit rating or buy a house. It's tough for anyone these days, let alone a fliberdegibbit (as my mom used to call me) like me!" – Cindy H.